Site Map
- About Us
- About Us
- The Scottish Motor Neurone Disease Association exists to help all those affected by Motor Neurone Disease (MND) within Scotland; those living with the disease, their families, carers and those health and social care professionals who contribute to the care of people with MND.
- Our History
- Learn about the origins of the Association.
- Our Organisation
- Outlines the Association's operating and governance structure.
- Our People
- Meet the Association's staff.
- Local Branches
- Contact your nearest local Association Branch.
- Working for SMNDA
- Current vacancies at the Association.
- How we raise and spend our money
- The Association's most recent income and expenditure charts.
- Conference and AGM 2008 Review
- Review of the Annual Conference and AGM 2008.
- Press Support
- Information for press and media regarding the Association, MND community, and MND.
- Perth Branch News
- Perth branch page
- Edinburgh Branch News
- Edinburgh Branch activities.
- Central Branch News
- Central branch activities
- Ayrshire Branch News
- Ayrshire branch activities
- Donate
- Make a Donation
- Make a donation to help the Association's work.
- Make a Regular Donation
- Donate by regular direct debit.
- Donate Online
- Make a one-time donation to the Association's work.
- A Gift in Your Will
- How to leave a gift to the Association in your will
- Payroll Giving - Information for Employees
- What you need to know about payroll giving.
- Payroll Giving - Information for Employers
- Payroll giving information for employers.
- Other Ways to Donate
- Donate by cheque, voucher or postal order donations.
- For Professionals
- For Professionals
- Educational opportunities for health and social care professionals.
- National Conference
- A national conference is organised approximately every 18 months.
- Regional Study Days
- Regional study days
- Education at work
- In service training is offered by our education officer to Health and Social Care Professionals.
- Information Resources
- Information Resources
- Specialist library and information service.
- Publications
- An introduction to the Association's information resources.
- Factsheets
- Download the latest factsheets on a range of topics related to MND.
- Resource Lists and Reading Lists
- Downloadable reading lists and other resources
- Other Downloads
- Audio and video files, including podcasts.
- Library
- Information for people with Motor Neurone Disease and health and social care professionals.
- Shelcat Catalogue
- NHS Scotland's e-library resource.
- Helpful Links
- Helpful links to other MND sites and resources.
- MND Sites and Groups
- Links to other MND charities and associations.
- Hereditary and familial MND support
- Links to support organisations for the familial/hereditary strain of MND.
- Medical information
- Links to medical information for the MND community.
- MND sites for children
- Links to sites which help to explain MND to children.
- Links for carers
- Links to resources and help for MND carers.
- Benefits for people with MND
- Links to benefits information for people with MND.
- MND News
- Our news feed collects the latest news on MND from around the world.
- Legal and Family Issues
- Factsheets
- Legal information
- Terms and Conditions
- Terms and conditions for use of our website.
- Accessibility
- The Association's web site has been built with accessibility in mind.
- Privacy Statement
- The Association's Privacy statement.
- MND
- Motor Neurone Disease
- Learn about Motor Neurone Disease.
- What is MND?
- What is Motor Neurone Disease?
- Newly Diagnosed
- In this section we aim to answer some of the most common questions asked by people who have been newly diagnosed with Motor Neurone Disease.
- Diagnosing MND
- Learn how MND is diagnosed.
- Treatments
- Information on treatments for MND.
- Four kinds of MND
- There are four main kinds of Motor Neurone Disease.
- Concerned you may have MND?
- Information for people who are displaying symptoms of MND.
- Inheritance Patterns
- Information on the inherited strain of MND (FMND).
- Why has diagnosis take so long?
- Why it takes so long to confirm the diagnosis of MND.
- What support can I expect from the Association?
- The Scottish Motor Neurone Disease Association has a wide range of services that you may find beneficial.
- Who is at greatest risk of developing MND?
- There is no definitive identifiable group at risk of developing MND.
- Are other members of my family likely to get MND too?
- One form of MND, amyotrophic lateral sclerosis, exists both in a form that relatives get (‘familial’) and a random (‘sporadic’) form.
- Are there any drugs for treating MND?
- There is only one drug licensed specifically for preventing the progression of MND.
- What are Stem Cells?
- Stem cell research is a novel area of research that has fuelled hope of a treatment for a variety of conditions including MND.
- Is it safe to continue regular exercise?
- Although you may not be able to exercise at the level you did before, it is important to remain active.
- Real Life Stories
- Read the stories of real people living with MND in Scotland.
- Nancy's Story
- The story of Nancy, who has ALS.
- John's story
- John Mackie MBE has ALS.
- Tim's Story
- The story of Tim Lester. Tim has MND and still enjoys a varied social life and international travel.
- Our Support
- Our Services
- Learn about the Association's many services for the MND community.
- Care Service
- Our four care teams across Scotland.
- Equipment Loan Service
- Specialist equipment loan service for people with MND.
- Family Information Evenings
- Family information evenings throughout Scotland
- Lang Break Caravan
- Lang Break Caravan in St Andrews, specially equipped for people with limited movement.
- Counselling
- Our counselling service helps to meet the emotional needs of people Affected by MND.
- Befriending service
- If you live in Fife or Tayside, you might want to consider getting some support from our Befriending Project.
- Research
- Research
- Latest updates on medical research into the causes of MND, as well as treatments.
- Global Research
- News into research developments around the world.
- Gene Chips
- The use of microarrays/gene chips in MND research
- Stem Cells
- One of the faster moving areas of biological research over the last few years has been associated with stem cells.
- Excitotoxicity and Glutamate
- Research into excitotoxicity and glutamate
- Mechanisms of Cell Death
- Mechanisms of cell death and apoptosis
- Superoxide Dismutase
- Summary of SOD1 research and functions
- Sub Cellular Components
- Involvement of organelles in MND
- Neurological Repair Mechanisms
- Research into neurological repair mechanisms
- Clinical Genetics and Biomarkers
- The role of clinical genetics in MND research
- Pharmaceutical Research and Clinical Trials
- Over the years many drugs have been looked at, but to date only Riluzole has been licensed for use in treating MND directly.
- Support Us
- Support Us
- Learn how you can support the Scottish Motor Neurone Disease Association.
- Fundraising
- Find out how you can get involved in fundraising for the Scottish Motor Neurone Disease Association.
- Fundraising Events
- Upcoming events and fundraisers.
- London Marathon
- London Marathon 2009 - Guaranteed Place Available!!
- Recent Fundraising Events
- Details and pictures from recent fundraising events.
- Helping Your Fundraising
- How we can help your fundraising.
- Fundraising Ideas
- Great ideas to raise funds for the Association.
- Company Support
- How companies can support our work.
- Charitable Trusts
- Donate by trusts or grants.
- Become a Member
- Join the Scottish Motor Neurone Disease Association
- Volunteering
- Volunteer opportunities within the MND community.
- Volunteer Opportunities
- Volunteer opportunities available through Scottish Motor Neurone Disease Association.
- Volunteer News
- News - Events helpers for Fun Run and Edinburgh Marathon
- Meet our Volunteers
- Human interest story about featured volunteers.
- Online Shop - Coming Soon!
- Online shop coming soon!
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